ENEWS -- February 2017
Lucky 13! Special Anniversary Issue
“I can remember sitting in a workshop many years ago at the CHPCA annual conference hearing about this new website being created to serve rural and remote people with issues relating to palliative care… There was a definite buzz in that room that day. I remember feeling my gut say this was going to be a wonderful tool…” – Barb Evans, Program Manager at Hospice Yukon
This month, Canadian Virtual Hospice enters its 14th year of providing information and personalized support to Canadians and people from every country around the globe. We have grown from a regional pilot project to the most comprehensive online knowledge management centre on palliative care, end-of-life care, loss and grief in the world (Fassbender, 2015). When we launched we had a part-time Executive Director, 0.1FTE physician and two job sharing, part-time clinical nurse specialists. Our team now includes physicians with specialization in adult, pediatrics, long-term care and rural palliative care, nurses, psychosocial specialists including a children’s grief specialist, spiritual care advisors, ethicists, a pharmacist, a community moderator, translator, communications specialist, editors, administration and IT. And our core operating budget is still $600,000 annually! We are grateful to the Winnipeg Regional Health Authority for our operating funding, to Canadian Partnership Against Cancer for project funding and to our countless partners who work with us to grow services for patients, families and health providers.
Scroll down to see our Top 13’s!
NEW ON VIRTUAL HOSPICE
VIDEOS – DR. MIKE HARLOS’ “PEARLS OF WISDOM”
EXCHANGE ARTICLE – LIFE LESSONS AT THE END OF LIFE
||This article by Virtual Hospice spiritual care advisor and University of Calgary professor Shane Sinclair PhD offers insights into positive life lessons that often present themselves at the end of life.
VIDEO – DOUG'S MUSIC, WIT AND WISDOM
||Doug Coulstring, from Truro Nova Scotia, shares his music, wit and wisdom about living with advanced cancer in this engaging video. In a conversation with Dr. David Henderson, a member of his palliative care team, Doug describes being diagnosed with advanced liver cancer, his misconceptions about palliative care and his approach to living with advanced illness.
EXCHANGE POSTER – EXPERIENCES OF BEREAVED FAMILY CAREGIVERS
RESOURCE – SUPPORTING YOUNG ADULT CAREGIVERS
||The Young Carers Project supports teen and young adult caregivers with resources around self-care and information to help navigate their experiences, emotions and needs.
RESOURCE - PEDIATRIC PAIN AND SYMPTOM MANAGEMENT GUIDELINES
||The booklet by the Dana Farber Cancer Institute/Boston Children’s Hospital is a guide to symptom management in children and a tool for identifying areas for self-study.
COURSE – LEAP “TAKING OWNERSHIP”
||This free, online module, developed by Pallium Canada is for health care professionals from different disciplines who wish to make primary-level palliative care a part of their daily work. Participants will learn the meaning of “palliative care” and the “palliative care approach,” how to identify patients who could benefit from a palliative care approach earlier in the illness and more.
NEW REPORT: THE ECONOMICS OF PALLIATIVE CARE
CONGRATULATIONS DR. DAVID HENDERSON
OPEN CALL FOR INNOVATIONS IN PALLIATIVE CARE
|Let’s make change happen! The Canadian Foundation for Healthcare Improvement (CFHI) has launched a call for innovations in palliative and end-of-life care. CFHI is calling on individuals and teams with demonstrated or emerging innovations in palliative care to apply. Selected applicants will present their innovation at the CFHI CEO Forum (June 21, 2017 in Toronto) and will benefit from CFHI support to identify opportunities to spread their innovation. Applications are due April 5, 2017.
COUNTING DOWN TO #CANADA150
||On February 1st, we began counting down to Canada's 150th anniversary. We are sharing something to celebrate about palliative care in Canada every day until July 1st. Follow the countdown on our facebook and twitter pages. Nominate a person, organization, program, or resource that has positively impacted palliative care in Canada by emailing firstname.lastname@example.org.
VIRTUAL HOSPICE "IN THE HOUSE"
||We were cited in the recent debate on Bill C-277 by MP Lloyd Longfield, "...We must take the final steps needed to make hospice palliative care available to all Canadians. Many here in this House have heard me speak at length about the importance of innovation, and here too it has a role to play... A perfect example is the Virtual Hospice, an online exchange where ordinary people communicate with palliative care professionals to improve care. The Virtual Hospice uses readily available technologies to help Canadians living in remote areas access the medical professionals they need while remaining in the comfort and security of their own homes and their own communities."
CHAD HAMMOND JOINS THE CHPCA
||Congratulations to Chad Hammond on joining the Canadian Hospice Palliative Care Association (CHPCA) as project manager of the Advance Care Planning project. Chad has worked in the field of supportive cancer and end-of-life care for the past 7 years. He completed a PhD in Culture, Health, and Human Development at the University of Saskatchewan in 2013, before taking on a postdoctoral fellowship at the University of Ottawa’s School of Rehabilitation Sciences.
BEST WISHES LOUISE HANVEY
||Louise Hanvey has been the CHPCA's Project Manager for the Advance Care Planning in Canada Project since its inception. She launched the Speak Up campaign and worked on a number of other palliative and end-of-life care initiatives. She developed the Facilitator Training Program for Pallium Canada and was the Project Manager for the EPEC*-O Canada Project for the Canadian Partnership Against Cancer. Louise also managed the Educating Future Physicians in Palliative and End-of-Life Care Project for the Association of Faculties of Medicine of Canada and the CHPCA. Wishing you all the best in your future endeavors.
KIDSGRIEVE2 – MARCH
|This online forum connects families, professional and volunteers with expert advice on supporting children and youth who are grieving a death or an expected death. On March 7, 2017 from 1-2pm EST, Andrea Warnick, a national children’s grief expert answers your questions. Email: KidsGrieve2@virtualhospice.ca to participate.
WHAT OUR VISITORS ARE CLICKING ON
- How long can someone live without food or water?
- Does morphine make death come sooner?
- What can be expected with end-stage liver disease?
- When Death is Near
- What can be expected as brain cancer progresses?
- What happens if someone has a morphine overdose?
- What can be expected with end-stage multiple sclerosis?
- What is Palliative Care?
- What happens when someone has cancer?
- What can be expected with liver metastasis?
- My friend’s mother is dying, what can I say to her family?
- Tips for talking with someone who is dying
- How can I support my husband who’s been diagnosed with cancer and is waiting for test results?
WHAT HEALTH PROVIDERS ARE LOOKING FOR
- What is the best approach to decreasing respiratory secretions at the end of life?
- Bereavement Risk Assessment Tool (BRAT)
- When Advanced Cancer Patients Won’t Eat: Family Member Responses
- Completing the Circle: End of Life Care with Aboriginal Families
- Is it better to use morphine or Dilaudid to treat dyspnea in end-stage heart failure?
- Schwab & England Activities of Daily Living Scale (Parkinson's Disease)
- Sexuality at the End of Life
- Crossing boundaries: Issues for hospice palliative care volunteers
- What Health Care Professionals Need to Know about Physician-Assisted Suicide and Euthanasia
- CancerChatCanada: Online support for family and friends of cancer patients
- Mindfulness and Reflective Practice: Enriching personal and professional growth
- ESAS-r: Edmonton Symptom Assessment System Revised
- Developing Palliative Care Programs in Long Term Care Homes
TOP 13 COUNTRIES ACCESSING VIRTUAL HOSPICE (OUTSIDE OF CANADA)
MOST VIEWED VIDEOS (991,394 YOUTUBE VIEWS)
- United States
- United Kingdom
- New Zealand
- South Africa
- A Story About Care (15:43)
- Personal Hygiene - Giving a Bed Bath (03:59)
- Personal Hygiene - Caring for the Skin (02:16)
- Pain and Cognitive Impairment: Reading the Cues (04:52)
- Canadian Virtual Hospice Palliative Care Video (07:19)
- Applying a Medication Patch (02:51)
- Myth of opioid addiction: Educating patients (5:02)
- Helping with movement - Turning someone in bed (3:39)
- Administering Medications - Giving medications under the tongue (1:25)
- Dignity in Care (28:16)
- Completing the Circle Healing Words About End of Life Spoken to Aboriginal Families - Part 1 (25:27)
- The 4 things that matter most (04:38)
- Pain medication myths: Addiction and hastened death (4:24)
February 19-21, 2017. Social Work Hospice & Palliative Care Network General Assembly, Scottsdale, AZ. We will see you at the booth!
February 22-25, 2017. American Academy of Hospice and Palliative Medicine General Assembly, Phoenix, AZ. We are looking forward to meeting you at our booth.
March 6-7, 2017. Dementia Care 2017, Winnipeg, MB. Swing by the Virtual Hospice booth!
April 7-8, 2017. Canadian Partnership Against Cancer Innovative approaches to optimal cancer care in Canada. Toronto, ON.
April 23-25, 2017. Hospice Palliative Care Ontario Conference. Richmond Hill, ON.
April 24, 2017. Mary O’Connor Palliative and Hospice Care Conference, Calgary, AB. We are looking forward to seeing you at the booth.
April 30-May 2, 2017. Canadian Conference on Medical Education, Winnipeg, MB. We will see you at the booth!
June 1-3, 2017. Canadian Society of Palliative Care Physicians Advanced Learning in Palliative Medicine Conference, Edmonton, AB.
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