Canadian Virtual Hospice | Portail palliatif canadien
ENEWS -- March 2016
  SPOTLIGHT ON
LIVINGMYCULTURE.CA
When your whole life has been a fight for survival, it is very difficult to give up.” Virtual Hospice and our partners are pleased to launch LivingMyCulture.ca! This video series of more than over 500 video clips shares the lived experience of people with advanced illness, family members, community leaders and health providers from 11 of Canada’s cultural communities. Developed as supportive tools for patients and families, they are also rich educative tools for health providers wishing to improve the delivery of culturally safe and inclusive care. Videos are available in 10 different languages. We are grateful to the Canadian Partnership Against Cancer for funding this initiative and filling a critical gap in information and support.

Thank you to all those who shared their very personal stories with us and to team members:
  • Glen Horst DMin (Team Co-Lead)
  • Shane Sinclair PhD (Team Co-Lead)
  • Mei Lan Fang MPH
  • Judith Sixsmith PhD
  • Romayne Gallagher MD, CCFP (PC), FCFP
  • Sandy Kwong MSW, RSW
  • Sheryl Reimer-Kirkham RN, PhD
  • Ingrid See RN, BSN, MEd, CHPCN(c)
  • Kelli Stajduhar RN, PhD
  • Vivian Collacutt BCS (ED), BS, MSW, RSW
  • Bejoy Thomas PhD
Virtual Hospice would also like to acknowledge and thank Golnaz Tabandeh for her contribution to LivingMyCulture.ca. Golnaz was a computer engineer and programmer who immigrated from Iran to Canada in 2006. At the time of her interview, she was receiving chemotherapy. Golnaz died on October 15, 2015. The family showed video clips from Golnaz's interview at her memorial service.
 
NEW ON VIRTUAL HOSPICE


FOR PROFESSIONALS
EXCHANGE ARTICLE – “THE VULNERABLE”: WHO ARE THEY?
In her new Exchange article Catherine Frazee OC, D.Litt., LLD. (Hon.)
discusses what it means to be vulnerable, who is susceptible to vulnerability and why. She is the Professor Emerita at Ryerson University’s School of Disability Studies and worked with the federal External Panel last year to facilitate a national consultation on physician-hastened death.

 

FOR EVERYONE
‘YOUR STORIES’ – PLEASE BE GENTLE WITH ME
Bayo-Hunter writes about grief in his poem Please Be Gentle With Me. “I walk on a path deep in the frozen winter’s snow and the noise of loneliness fills my head. For my thoughts are of my Wife Joyce, other members of Family, Friends and even my Furry Friends that are now since dead...”

FOR PROFESSIONALS
RESOURCE – ASSESSING PATIENTS WITH CONGESTIVE HEART FAILURE

The Implantable Cardioverter Defibrillator Deactivation (ICD) Algorithm, developed by the B.C Heart Failure Network supports health care providers in decision making and assessing when to deactivate an ICD in patients with congestive heart failure.

FOR EVERYONE
RESOURCE – MEDLINEPLUS

MedlinePlus is the National Institutes of Health's website for patients and families. The site provides information about diseases, conditions, and wellness issues. Use MedlinePlus to learn about the latest treatments, look up information on a drug or supplement, find out the meanings of words, or view medical videos or illustrations.

FOR PROFESSIONALS
NEW RESOURCE – SPIRITUAL ASSESSMENT TOOL
Drs. Anandarajah and Hight’s article Spirituality and Medical Practice: Using the HOPE Questions as a Practical Tool for Spiritual Assessment describes using HOPE concepts for discussions of spiritual assessment. The HOPE concepts are as follows: H—sources of hope, strength, comfort, meaning, peace, love and connection; O—the role of organized religion for the patient; P—personal spirituality and practices; E—effects on medical care and end-of-life decisions.

FOR EVERYONE
RESOURCE – EXPLAINING DEATH TO CHILDREN
A pet, a friend or a relative dies, and it must be explained to a child. The book Lifetimes: The Beautiful Way to Explain Death to Children is an excellent tool for explaining to children that death is a part of life. Reading level: Ages 4-8.

 

NEWS

GOOD NEWS FOR PALLIATIVE CARE - CPAC FUNDING RENEWED
The recently released federal budget confirmed ongoing funding to the Canadian Partnership Against Cancer of $47.5 million annually. Virtual Hospice applauds the Federal Government's continuing commitment to fund CPAC and the work they do in cancer prevention, control and palliative care.
 

SAFEGUARDS FOR CANADIANS REQUESTING PHYSICIAN ASSISTED SUICIDE
The Vulnerable Persons Standard is a set of safeguards that were developed to help ensure that Canadians requesting assistance from physicians to end their life can do so without jeopardizing the lives of vulnerable persons who may be subject to coercion and abuse.

MARCH IS #PHARMACISTAWARENESSMONTH
Virtual Hospice would like to celebrate and thank all pharmacists for the contributions they make in the delivery of hospice and palliative care. We would also like to welcome Bruce Kennedy BSc.(Pharm), M.B.A. to the Virtual Hospice Clinical Team. Bruce is a Clinical Pharmacy Specialist in palliative care with skills in providing end-of-life focused home based care to patients as well as hospice residences and hospital palliative care units. Bruce was an integral member of the Methadone4Pain.ca development team. Welcome to the team Bruce!

NATIONAL CARERS DAY: APRIL 5
The first Tuesday of April is National Carers Day, a day that recognizes and celebrates the valuable work that caregivers do. Carers Canada invites you to join their social awareness campaign, “Because I Care – Recognizing Caring Canadians," write on their caring wall or join the conversation on twitter using the hashtag #thxcarers. Here is also a list of some helpful resources for caregivers: 

DO YOU HAVE AN ADVANCED CARE PLAN? WHAT’S YOUR EXCUSE?
April 16 is Advance Care Planning Day. This year Speak Up has two campaign themes “Are you a substitute decision maker?” and “What’s your excuse?” Visit the Speak Up Toolkit webpage for resources and to learn more about advance care planning. Virtual Hospice also has over 80 books, online resources and more on advance care planning including:

A TRIBUTE TO DR. DAVID ROY
The team at Virtual Hospice is saddened by the death of Dr. David J. Roy, founder and editor-in-chief of the Journal of Palliative Care. Dr. Roy made invaluable contributions to the field of palliative care. Watch Dr. Roy’s video in our Gallery Pain medication myths: Addiction and hastened death (4:24).

TVN ANNOUNCES NEW NAME
TVN, (Technology Valuation in the Elderly Network) has changed its name to the Canadian Frailty Network. Their mandate has evolved into mobilizing knowledge and frailty assessment. The new name was chosen by a survey of network members.

UPDATE: GIVE A MILE


In mid-February Give A Mile provided their 200th free flight. In 2015, they gave away a total of 104 flights, including 36 during their Christmas Campaign. This year, their goal is to provide over 120 flights to families in need. Give A Mile is a not for profit organization that provides free flights to people needing to travel to visit someone who is seriously ill via donations of travel loyalty miles. To find out about flights or to donate airmiles to help a family in need go to giveamile.org.

DR. HARVEY MAX CHOCHINOV PENS ARTICLES ON PHYSICIAN-ASSISTED DYING
Dr. Harvey Max Chochinov recently published a series of articles on hastened dying in the Winnipeg Free Press. Read We must speak for those who can’t, Too quick to ask for early death? and Protecting, caring for the mentally ill.

CANADIAN HOSPICE PALLIATIVE CARE ASSOCIATION (CHPCA) ADDRESS TO PARLIMENTARY COMMITEE

In February, CHPCA Executive Director Sharon Baxter spoke about hospice palliative care in the context of physician-assisted dying at the tenth meeting of the Special Joint Committee on Physician-Assisted Dying. “The Canadian Hospice Palliative Care Association believes hospice palliative care does not include physician-hastened death.” Watch a recording of the meeting here.
 

CALENDAR


April 5, 2016. Caregiving Recognition Day, Winnipeg, MB.

April 13-16, 2016. Canadian Association for Spiritual Care Conference, Vancouver, BC.
Virtual Hospice spiritual care advisor Shane Sinclair, communications consultant Marissa Ambalina and team members Sandy Kwong and Lawrence Chung will be presenting on our new online tool: LivingMyCulture.ca. We look forward to seeing you at the booth.

April 17-19, 2016. Hospice Palliative Care Ontario Annual Conference, Richmond Hill, ON. Brenda Hearson and Marissa Ambalina will be presenting.

April 27, 2016. Mary O’Connor Palliative and Hospice Care Conference, Calgary, AB. Virtual Hospice’s Shane Sinclair will be presenting.

April 28-29, 2016. New Brunswick Hospice Palliative Care Association Conference, Fredericton, NB. Executive Director Shelly Cory will be presenting a plenary.

May 10, 2016. Long Term & Continuing Care Association of Manitoba Conference, Winnipeg, MB. Virtual Hospice’s Marissa Ambalina will be presenting and is excited to meet you at the booth.

May 11-13, 2016. Canadian Association of Psychosocial Oncology Conference, Halifax, NS. Virtual Hospice's Shane Sinclair, Shelly Cory, and Marissa Ambalina will be presenting. Drop by our booth.

May 12-14, 2016. Canadian Society of Palliative Care Physicians Advanced Learning in Palliative Medicine Conference, Ottawa, ON. See you at the booth.

May 16-17, 2016. John K. Friesen Conference: Late Life Issues and Innovations, Vancouver, BC.

May 24-27, 2016. Canadian Pain Association Annual Scientific Program, Vancouver, BC. Virtual Hospice looks forward to seeing you at the booth.

May 25-27, 2016. Dignity Therapy Training Workshop, Winnipeg, MB.

May 26-27, 2016. Indigenous Health Conference, Toronto, ON. Indigenous Voices team member Carrie Bourassa will be presenting "Indigenous Voices: Stories of Serious Illness and Grief."

May 27-28, 2016. British Columbia Hospice Palliative Care Association Conference, Vancouver, BC. Our Executive Director Shelly Cory will be presenting a plenary and is looking forward to seeing you at the booth.

May 30-31, 2016. Canadian Nursing Education conference, Toronto, ON.

June 2-3, 2016. North Simcoe Muskoka Conference: Hot Trends and Topics in Hospice Palliative Care, Casino Rama, Orillia. Virtual Hospice's Shelly Cory will be presenting.

June 3-5, 2016. Canadian Hospice Palliative Care Association’s Learning Institute, Banff, AB.

June 6-7, 2016. National Health Leadership Conference, Ottawa, ON. Virtual Hospice’s Shelly Cory will be presenting.

June 20-22, 2016. Canadian Nurses Association Biennial Convention, Saint John , NB. Virtual Hospice's Katherine Cullihall and Indigenous Voices team member Debbie Mckenzie will be presenting.
 
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(C) Portail canadien en soins palliatifs, 2016