Canadian Virtual Hospice | Portail palliatif canadien


ENEWS -- March/April 2017
  SPOTLIGHT
Caregiving

Did you know there are over 8 million family caregivers in Canada?  Balancing caregiving duties, personal life and work can be exceptionally demanding. This edition of eNews focuses on articles and resources to support caregivers.
FOR EVERYONE
RESOURCE - CAREGIVER TELE-CONNECT
Caregivers Nova Scotia is now offering Caregiver Tele-Connect, a 4-week facilitated support group for family and friend caregivers caring for someone with a life-threatening illness. The phone-based initiative provides peer support, caregiving education, and community resource information. 

FOR EVERYONE
CANADA CAREGIVER CREDIT
Budget 2017 proposes to simplify the existing tax relief for caregivers by replacing three existing tax credits with a single new Canada Caregiver Credit. This new, non-refundable credit will provide better support to those who need it the most. The credit will be more accessible and will extend tax relief to more caregivers.

FOR EVERYONE
RESOURCE – HOW TO COMMUNICATE WITH PEOPLE WHO HAVE ALZHEIMER'S DISEASE
This short animated video (04:01) by Dr. Susan Lane suggests ways for family members to adjust their communication to meet the needs of people with Alzheimer’s disease and dementia.

FOR EVERYONE
NEAT IDEA TO SUPPORT CAREGIVERS: COMFORT BASKETS
Volunteers at the Bethesda Regional Health Centre, in Steinbach, Manitoba spent a morning putting together comfort baskets that are given out to support families. The baskets included MyGrief.ca postcards and tissues, LivingMyCulture.ca teas and more. If you have an idea to share, email: marissa@virtualhospice.ca, we'd be happy to feature it.

FOR EVERYONE
RESOURCES TO SUPPORT CAREGIVERS
  • How do I administer a medicated patch? How do I turn someone in bed? How do I give a bed bath? Our caregiving demonstration videos provide step-by-step instructions on common caregiving tasks.
  • CaregivingMatters - An online resource offering information and peer support for caregivers.
  • MyGrief.ca – free, online resource to help you with your loss and grief. Includes a section on grieving an expected loss.
  • Join the conversation: KidsGrieve2 – In this free public web forum, Andrea Warnick, a national children’s grief expert, answers your questions on supporting children and youth who are grieving a death or an expected death. To participate in the next live forum on May 9, 2017 from 1-2pm Eastern Time email: KidsGrieve2@virtualhospice.ca

NEW ON VIRTUAL HOSPICE


FOR PROFESSIONALS
RESOURCE – BURDEN SCALE FOR FAMILY CAREGIVERS (BSFC)
The BSFC (short version) is a global measure of perceived burden among family caregivers, designed for use in both clinical practice and research studies. The tool was originally developed in Germany by Prof. Dr. med. Elmar Graessel, Department of Psychiatry and Psychotherapy, Erlangen, Germany et al. It has been translated into several languages.

FOR PROFESSIONALS
VIDEO: A THERAPEUTIC INTERVENTION FACILITATING CONNECTION IN THE CONTEXT OF LIFE-LIMITING ILLNESS
This video (14:01) explains an expressive arts project developed by Elizabeth Dougherty  MSW, RSW that can be completed with families of all ages, from diagnosis of a life-limiting illness through to bereavement.

FOR EVERYONE
RESOURCE: PREGNANCY AND INFANT LOSS SUMMIT RECOMMENDATIONS
This summary outlines recommendations put forward by the speakers at the 2016 Pregnancy and Infant Loss Summit in Ontario.

FOR PROFESSIONALS
RESOURCE: NATIONAL NURSING FRAMEWORK ON MAID
  The Canadian Nurses Association has developed a national framework for nurses and nurse practitioners on Medical Assistance in Dying (MAID). This document provides details on Canadian legislation related to MAID, nursing roles and responsibilities, points of consideration in the process of MAID and specifics on conscientious objection.

FOR PROFESSIONALS
EXCHANGE ARTICLE – A NUNAVUT PERSPECTIVE
“There is something powerful about moving calmly through the sky and looking down on the Arctic ocean in the springtime... one can feel both exceedingly small and ephemeral but also joyful and emotion filled at the wondrous brief adventure that is human life…” In medicine, sharing personal narratives is an emerging practice. We are grateful to Madeleine Cole MD, CFPC a family doctor who lives and works in Iqaluit, Nunavut for sharing her reflections on caring for the dying.
 

NEWS


IN MEMORIUM OF DAVID AND HEATHER ABRIAL
  Dr. David Abriel and his wife, Heather, were tragically killed in a highway collision on February 2, 2017. Dr. Abriel was the palliative care physician for the South Shore of Nova Scotia for 15 years. His contribution to palliative care in the province was significant, including his strong advocacy of medical assistance in dying. Standing 6’ 6” tall, Dave was literally and figuratively a larger-than-life character, and he was much loved by his patients and colleagues. Dave and Heather were a close team and actively contributed to their community musically as well as professionally. Their loss is deeply felt across the community.

NATIONAL CARERS DAY: PRIME MINISTER'S STATEMENT IN RECOGNITION OF CAREGIVERS
Today, on April 4th - National Carers Day, the Prime Minister released a statement recognizing the role and value of family caregivers. This is an action that many caregivers and stakeholders have collectively advocated for over the years. This acknowledgement marks an important step in moving forward a national agenda to provide supports for individuals who take on an unpaid caring role.

CANADIAN SOCIAL WORKER HONOURED IN UNITED STATES
Congratulations to Maxxine Rattner,  a palliative care Social Worker at Kensington Hospice in Toronto on receiving the Emerging Leader Award at the Social Work Hospice Palliative Network in the United States in February 2017.

CONGRATULATIONS DR. KELLI STAJDUHAR!
Dr. Kelli Stajduhar has been announced as the winner of the 2017 Confederation of University Faculty Associations BC Ehor Boyanowsky Academic of the Year Award. This award recognizes a recent outstanding contribution to the community beyond the academy through research or other scholarly activity.

INNOVATIVE APPROACHES TO OPTIMAL CANCER CARE IN CANADA
There's still time to register for the Innovative Approaches to Optimal Cancer Care in Canada conference taking place on April 7-8, 2017 in Toronto. This is a one-of-a-kind opportunity to connect with cancer colleagues from across Canada and learn about innovations in cancer care.

CAN MEDICAL ASSISTANCE IN DYING HARM RURAL AND REMOTE PALLIATIVE CARE IN CANADA?
Andrew Collins MD, CCFP shares his thoughts on MAID and its potential effects on rural and remote physicians in Canada.
 

MCGILL QUALITY OF LIFE QUESTIONAIRE
After more than 20 years, the McGill Quality of Life Questionnaire (MQOL) has been revised. Why did it take more than 20 years? What’s in the revised MQOL version? Full article

NEW COURSE: INTERPROFESSIONAL EDUCATION IN PALLIATIVE AND END-OF-LIFE CARE ONCOLOGY (IEPEC-O)

de Souza Institute has launched the iEPEC-O course. iEPEC-O is designed to help health providers integrate palliative care into practice, and support them in providing high-quality care for patients with advanced illness and their families. The curriculum has been adapted and updated from the Education in Palliative and End-of-Life Care for Oncology curriculum.

#AllMyLifeQs: SALZBURG TWITTER SERIES ON PALLIATIVE CARE


 
Sixty invited international delegates (including our Executive Director, Shelly Cory) met in December 2016 to discuss global opportunities and challenges in palliative care as part of the iconic Salzburg Seminar Series. For the first time in the history of the Salzburg Seminar, the outcome was not a statement, but instead, a set of nine questions to encourage discussions on palliative care. Follow the debate throughout 2017  #AllMyLifeQs.

GILLIAN MACMICHAEL LECTURESHIP AWARDED

 
The Canadian Virtual Hospice is honoured to receive the 2017 Gillian MacMichael Lectureship Award. The award is a partnership between the family of Gillian MacMichael, the Gillian MacMichael Endowment Fund of the QEII Health Sciences Centre (QEII HSC) Foundation and the Nova Scotia Hospice Palliative Care Association (NSHPCA). On behalf of Virtual Hospice, Fred Nelson will be delivering the opening plenary on grief and bereavement and Kali Leary and Hodan Nalayeh will be delivering a concurrent session on cultural and spirituality at the annual NSHPCA conference in June.

BILL C-277: DEVELOPMENT OF A FRAMEWORK ON PALLIATIVE CARE IN CANADA
Bill C-277 is currently being studied by the House of Commons Standing Committee on Health. Several organizations including the Canadian Hospice Palliative Care Association, Canadian Society of Palliative Care Physicians and the Canadian Nurses Associations appeared as witnesses. Watch the proceedings.

RYAN’S HOUSE HOSPICE TOUR
In February, Virtual Hospice had the opportunity to tour Ryan’s House Hospice in Phoenix, AZ. Thank you to the Ryan’s house staff for taking the time to show us your amazing facility - from the memorial garden, sensory room, arts and crafts room, music room, multimedia room, hydrotherapy pool, and more.

VIRTUAL HOSPICE REACHES 1 MILLION YOUTUBE VIEWS!
In early March we reached over 1 million views on YouTube! To celebrate we did a countdown of our Top 10 most viewed videos. Check them out at #VirtualHospiceTop10. Can you guess what our number one most viewed video was?

#CANADA150: LET’S CELEBRATE PALLIATIVE CARE
Have you been following us on Facebook and Twitter? On February 1st, (150 days before our 150th birthday on July 1), we began counting down to Canada's 150th anniversary using the hashtag #Canada150. Each day we highlight something to celebrate about palliative care in Canada. Send your ideas about what we should feature to marissa@virtualhospice.ca.

APRIL 16 IS NATIONAL ADVANCE CARE PLANNING DAY
What is advance care planning/For more information on advance care planning visit Speak Up or follow the conversation on twitter using the #ACPDay2017 hashtag.

CALENDAR


April 5-8, 2017. Association for Death Education and Counselling Conference. Portland, OR. Christopher MacKinnon PhD and our Executive Director Shelly Cory will be presenting.

April 7-8, 2017. Canadian Partnership Against Cancer Innovative approaches to optimal cancer care in Canada. Toronto, ON.

April 23-25, 2017. Hospice Palliative Care Ontario Conference. Richmond Hill, ON.

April 24, 2017. Mary O’Connor Palliative and Hospice Care Conference, Calgary, AB. We are looking forward to seeing you at the booth. Dr. Harvey Max Chochinov is the keynote speaker.

April 30-May 2, 2017. Canadian Conference on Medical Education, Winnipeg, MB. We will see you at the booth!

May 2-5, 2017. Canadian Association of Psychosocial Oncology Conference. Vancouver, BC. We are presenting on MyGrief.ca and Elder Roberta Price, a Coast Salish Elder is leading a sharing circle to discuss culturally safe care.

May 4-6, 2017. Canadian Gerontological Nursing Association Conference. Ottawa, ON. Swing by our booth!

May 9, 2017. Long Term and Continuing Care Association of Manitoba Conference. Winnipeg, MB. We are looking forward to meeting you at the booth.

June 1-3, 2017. Nova Scotia Hospice Palliative Care Association Conference. Halifax, NS. Fred Nelson will be presenting a plenary on grief, Kali Leary and Hodan Nalayeh will be presenting a concurrent session on cultural competency and Marissa Ambalina will be presenting on social media.

June 1-3, 2017. Canadian Society of Palliative Care Physicians Advanced Learning in Palliative Medicine Conference, Edmonton, AB.

June 5-7, 2017. International Death, Grief and Bereavement Conference . La Crosse, WI. Dr. Chris MacKinnon is presenting about MyGrief.ca.

June 9, 2017. The Caregiver Show. Toronto, ON. We will see you at the booth!

September 17-20, 2017. International Public Health and Palliative Care Conference. Ottawa, ON.

September 20-23, 2017. Canadian Hospice Palliative Care Conference. Ottawa, ON.
 
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(C) Portail canadien en soins palliatifs, 2017