DEBRA Australia News
November 2013
Dine and Donate 2013
International EB Awareness week is held every year from the 25th-30th of October to help educate and raise awareness about Epidermolysis Bullosa. This year DEBRA Australia held a new Dine and Donate campaign, suggesting people get their friends and families and share a meal together to help raise funds for support for DEBRA Australia. A big thank you to all who participated, here are some of their stories:
Mia and Sophie selling cookies at Balmoral beach to raise money for the butterfly children. Mia also raised money by asking her friends who came to her party to donate money rather than buy her a birthday present. The girls raised an amazing $500 and hoped that this would help out.  It certainly has and is very much appreciated!
Kimberley from Melbourne raised $854 at a luncheon held with friends and family.
Mary and Kylie from Sydney raised $1,400 
at a high tea also held with friends and family attending.

Kate, Linda and Laraine from Victor Harbor held a movie night and raised $1,040 on the night. 

Family Support Coordinator visit to SA


Simone attended the South Australia EB clinic in October and met up with the EB families and the health professionals involved with their care.  It was a great opportunity to meet up face to face and inform families of the new Family Support Program and how DEBRA could assist families.

SA Quiz Night
(article by Laraine Frost)
Never believing that we could possibly have the numbers for a successful Quiz Night, whenever it was suggested I cringed and quickly changed the subject.

Then one of my walking buddies said she had approached the President of the Butterfly Conservation, who just happened to also be a Quiz Master, and he had agreed to assist us. I was told that all I had to do, was find a reasonably priced venue, get some prizes, do the advertising, get bums on seats etc, etc. Sounds simple? Sure. I never even go to Quiz Nights, so had no idea what I was in for.

But the night was a huge success, not least with the fabulous Jessica from the Research team whose personality made the night and definitely made everyone feel welcome. After expenses we raised $2698.45 on the night. A great night was had by all, but will we do it again? Let’s just wait and see.

We would like to thank all involved, especially David Keane for being Quiz Master and the Modbury Bowling Club for their fantastic venue and support.   

EBCC Update

The EB Cross Country Ride planning is well under way with a fun packed 10 day event starting on the 14th March at Adora Downs, Queensland and finishing in the Hunter Valley, New South Wales.  If anyone is interested in finding out more please go to our website which outlines the route and costs involved.   All money raised will help fund our Family Support Program and EB Nurses around Australia.
Rob and Lenny on the survey working out next year's route.

Thank you to Jacqui

Due to study and family commitments Jacqui is stepping aside as our part time marketing contractor. DEBRA is very grateful for Jacqui’s hard work and dedication so from all of us at DEBRA, thank you and all the best.

Jacqui and her son Samuel

DEBRA now has engaged the services of a bright young man Scott who has already become an invaluable part of the DEBRA team.  Scott is fresh out of University as a Graphics and Website Designer with IT experience and keen to work with DEBRA and learn more about the charity organisation.

Little Heroes Foundation donation of playground equipment


Alessio in WA on his new trampoline.
Eliana in her new play fort in Western QLD.
Beau in his new fort in VIC.

Little Heroes Foundation has generously donated backyard play equipment to children living with EB around Australia as part of their Alex’s Playground project. Thank you Little Heroes Foundation for making life a little easier and more fun for these children who endure hours of dressing changes and pain on an ongoing basis. 

Annual General Meeting

The Annual General Meeting was held 27th October 2013.   Board of Directors for the following year are – John Bacon (Chairman), Michael Fitzpatrick (Vice Chairman), Shay Zulpo, Samantha Drake, Mary Woods, Jenny Marty, Melinda Oxford, Karen Frost, Zlatko Kopecki, Donna Whiffin. Part time employees Sue McKenna and Simone Baird.  The Board would like to thank all of the State Representatives and volunteers for their hard work and dedication that have got DEBRA to where it is today. 

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The printing of DEBRA News is kindly donated by Nu Skin.

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