Consultation - Have YOUR say
Thank you to all those who contributed to the government consultation and who also shared their, more detailed, experiences with the NDSPG. We are now working hard to consolidate the data gathered and present it as evidence to the Civil Servants working on the guidance. At NDSPG we believe it is vital that those with Down syndrome, their families, carers, friends and experts working with them, contribute to the guidance in a meaningful way because they understand the frustrations and limitations of current systems and also have many views about how to improve things. They know what works and what doesn't, what is helpful and what is a hindrance, what is beneficial and what is a waste of time.
So, we are excited to launch phase 2 of our consultation. We are asking people to complete the questionnaires that are relevant to them in the areas of health, education, social care and employment. This time we are collecting more specific, quantitative research which we will analyse and forward to the civil servants. The questionnaires require tick-box answers and are quick and easy to do. When answering the questionnaires you may wish to consider where Down Syndrome specific experience and provision would have been useful. For example, in school did teachers and therapists have training about how people with Down syndrome learn, do health professionals understand the health needs and how they can affect people with Down syndrome.
You can access our consultation using this link https://ndspg.org/
We appreciate that not most will not have experience across all of the topics, so we have created individual questionnaires split into three different respondent types:
To be completed by Parent / carer
To be completed by individual with Down syndrome, with assistance where necessary
To be completed by ALL professionals who help people with Down syndrome
In addition to our consultation, we recommend people complete the Government’s own Call for Evidence